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The
Myositis Support Group is a UK charity providing
advice and support to individuals and their families affected by
Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile
Dermatomyositis.
We also raise funds and promote medical research to improve the
diagnosis, treatment, management and understanding of these rare
illnesses.
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more about the Support Group. |
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Latest
News |
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London Marathon News
Congratulations to James and Mick who sucessfully completed the London Marathon. James completed in 3hrs 24mins and 3secs in position 3329 and Mick completed in 6hrs 42mins and 27secs in position 33639.
There is still time to sponsor them, click on the Just Giving icon. Thank you for your support.
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MEETINGS
AGM & mini-conference - Sunday 13th July, Holiday Inn, Eastleigh near Southampton. Please see March Flyer for more details.
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RESEARCH
We have awarded the Letitia Rawson Fellowship to Dr Zoe Betteridge to continue her research at Bath University into novel antibodies associated with myositis.
read more about their work in the research and information pages.
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JUST WALK OPEN CHARITY EVENT
Sue Standing is taking part in the Just Walk Open Charity Event. She will be walking 15km across the South Downs on Saturday May 10th. Sue says "I will be walking for Myositis. My nephew was recently diagnosed with Myositis. His Mum and Dad will be walking as well."
Details on the event can be found at www.just-walk.co.uk
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Latest Fundraising News
Please visit the Just Giving website for details on our fundraisers www.justgiving.com/myositis.
Lynne Nazer is on a sponsored diet.
Shelly Egan is "Going Blue".
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NEWSLETTER UPDATE
March Flyer, Newsletter 63 and Annual Review 2006-2007 now online
Deadline for articles for Newsletter 64 is Friday 18th April 2008.
We would love to hear of your "Good News" stories for the Newsletter. Have you just got married, celebrated the birth of a baby, has your child returned to school full time, have you passed your driving test, graduated, gone back to work, off all medication and discharged from hospital? Please send your story to the office of email les@myositis.org.uk and if you wish to include a photo that would be great. For it is this information that makes the Newsletter interesting reading.
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Latest Fundraising News
Please visit the Just Giving website for details on our fundraisers www.justgiving.com/myositis.
Rachel and Kenton Sumner are running the Bracknell Half Marathon on the 27th April.
Lynne Nazer is on a sponsored diet.
Shelly Egan is "Going Blue".
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Bracknell Half Marathon - Sunday 27th April
Congratulations to Rachel Sumner who completed the Bracknell Half Marathon in just over 2 hours.
Rachel has raised to date over £1000 please sponsor her at www.justgiving.com/myositis
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The Myositis Support Group has
made a Fundraising Promise commissioned by the Fundraising
Standards Board to ensure its fundraising activities are open
and fair. |
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