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The
Myositis Support Group is a UK charity providing
advice and support to individuals and their families affected by
Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile
Dermatomyositis. We also raise funds and promote medical research to improve the diagnosis, treatment, management and understanding of these rare illnesses. » Read more about the Support Group. |
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Latest
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NEWSLETTER 67 IS NOW ON LINE..... We would love to hear of your "Good News" stories for the Newsletter. Have you just got married, celebrated the birth of a baby, has your child returned to school full time, have you passed your driving test, graduated, gone back to work, off all medication and discharged from hospital? Please send your story to the office of email les@myositis.org.uk and if you wish to include a photo that would be great. For it is this information that makes the Newsletter interesting reading. More»  More » LONDON MARATHON 2012 We have now filled all of our 8 places for the 2012 London Marathon. Due to the cost of these places to the charity each runner has made a guarantee to raise a minimum of £1,000. However, this can be done throughout the year with various types of fundraising; they do not necessary need to rely only on sponsorship donations . More » More » More » Le Tour De VinThe Incentive FM-organised charity event held last week in the Rhone wine region of southern France has been declared a success, with over £4,000 raised.
Le Tour du Vin – planned to be the first in an annual series - took place 27 - 30 July and involved a cavalcade of cars, some travelling from the UK and others hired at Lyon. Represented in the group were a number of property and FM companies, as well as a wide variety of guests and supporters. Money raised over the course of the two days (which is still being counted as we write) will go to the nominated charity, the Myositis Support Group, to help fund new research and provide support for those affected by this relatively unknown The Waud family have already helped raise over £15,000 this year when their nephew, James Robinson took part in the London Marathon as one of our Gold Bond runners. More » TEDDY-BO BOOK AND BEAR FOR CHILDREN WITH JDM The Teddy-Bo Book and Bear were launched at the conference and are now available to purchase ... More »  GREAT SOUTH RUN Chairman, Les Oakley completed the run on Sunday 30th October in 1hour 50 minutes and finished in 12,526 place out of 24,000 runners and was placed 207 in his age group 60 - 64! Trustee, Nikki Coleman was unable to take part in this event. If you or your friends and family would like to sponsor Les you can do so on line at http://www.justgiving.com/Les-Oakley or by Text by entering the amount your wish to donate (i.e. £1) followed by the following code LMSG63 and text to 70070 or you can always send any donations into the office. Thank you! More » To all our members, their families and friends we wish you all a very happy and healthy New Year from Les, Irene and the Trustees.BRITISH 10k LONDON RUN
We have secured 6 places for this year's London 10K which takes place on Sunday 8th July. The minimum amount required to raise is £250. If you know of anyone who would be interested in one of these places or would like more information then please email msg@myositis.org.uk  IBM FALLS QUESTIONNAIRE
Andy Hiscock MCSP, Research Physiotherapist at Queen Square London is running a study on IBM in the form of a questionnaire. If you would like to take part in this study or would like more information please email Andy at a.hiscock@ucl.ac.uk The MSG are pleased to be able to help with this study and have made a small grant towards the cost of sending out the questionnaire. |
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