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The
Myositis Support Group is a UK charity providing
advice and support to individuals and their families affected by
Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile
Dermatomyositis.
We also raise funds and promote medical research to improve the
diagnosis, treatment, management and understanding of these rare
illnesses.
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more about the Support Group. |
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Latest
News |
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LONDON MARATHON 2009
"TEAM MUSCLE" COMPLETED THE MARATHON!
FRANK 3 HOURS 55 MINUTES
ANN-MARIE 3 HOURS 57 MINUTES
DAVID 4 HOURS 10 MINUTES
LES 5 HOURS 47 MINUTES
WELL DONE TO ALL FOUR!!!!!
THANK YOU TO ALL WHO HAVE ALREADY SPONSORED THEM BUT IT IS NOT TOO LATE TO SUPPORT THEM
ANYONE WISHING TO DONATE CAN DO SO ON LINE BY CLICKING THE JUST GIVING LOGO ON THE RIGHTHAND SIDE OF THE PAGE OR BY SENDING YOUR DONATIONS TO THE OFFICE.
THANK YOU TO ALL WHO HAVE ALREADY DONATED.
FOR THOSE OF YOU ON "FACEBOOK" YOU CAN SEE THE PHOTOS ON THE FOLLOWING LINK
http://www.facebook.com/photo.php?pid=1791361&id=46104558729#/photo.php?pid=1791422&id=46104558729
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RESEARCH
being up dated
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NEWSLETTER UPDATE
Newsletter 64 and Annual Review 2007-2008 now online
We would love to hear of your "Good News" stories for the Newsletter. Have you just got married, celebrated the birth of a baby, has your child returned to school full time, have you passed your driving test, graduated, gone back to work, off all medication and discharged from hospital? Please send your story to the office of email les@myositis.org.uk and if you wish to include a photo that would be great. For it is this information that makes the Newsletter interesting reading.
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Latest Fundraising News
Please visit the Just Giving website for details on our fundraisers www.justgiving.com/myositis.
Joshua Bell - Sheffield Half Marathon 26th April
David Edwards, Les Oakley, Frank Littler and Ann-Marie London Marathon 26th April
Ros Munday and Pauline Stokes - 20K "Just Walk" 9th May
Charlie and Billy Wicks age 6 and 4! 2k family run around Bluewater 14th June
Rob Grummitt- Iron Man Austria 5th July
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AGM and Mini Conference 2009
This year's meeting will be on Sunday 5th July at The Holiday Inn, Eastleigh, Nr. Southampton. Details will be in the Feb/March flyer.
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AGM AND MINI CONFERENCE 2009
Please note the date of the meeting in the March flyer is wrong. The meeting is on SUNDAY 5TH JULY AND NOT 6TH JULY.
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The Myositis Support Group has
made a Fundraising Promise commissioned by the Fundraising
Standards Board to ensure its fundraising activities are open
and fair. |
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