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The
Myositis Support Group is a UK charity providing
advice and support to individuals and their families affected by
Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile
Dermatomyositis. We also raise funds and promote medical research to improve the diagnosis, treatment, management and understanding of these rare illnesses. » Read more about the Support Group. |
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NEWSLETTER 65 IS NOW ON LINE..... We would love to hear of your "Good News" stories for the Newsletter. Have you just got married, celebrated the birth of a baby, has your child returned to school full time, have you passed your driving test, graduated, gone back to work, off all medication and discharged from hospital? Please send your story to the office of email les@myositis.org.uk and if you wish to include a photo that would be great. For it is this information that makes the Newsletter interesting reading. More»  Juvenile Dermatomyositis Fundraising Event Chris and Nikki Coleman, who's daughter, Katherine was diagnosed with JDM in July 2008 held a very successful "Fairy Night" party in November. A cheque for £7,000 was presented to Dr Alice Lehay at Southampton General Hosptial to improve training and management for children with JDM. For more information or to make a donation please visit Nikki's fundraising page on Just Giving www.justgiving.com/coleman1/ In November Nicki will be holding a "Fairy Masked Ball" details to follow! More » Fundraising Glider Flight Su Wilson is taking a glider flight at Lasham Airfield Monday 26th April 2010 at midday to raise funds for the group. If you would like to sponsor her please go to her just giving site at www.justgiving.com/Su-Wilson More »  LONDON MARATHON 2010 WE HAVE 7 RUNNERS IN THIS YEAR'S MARATHON 5 USING OUR GOLD BOND PLACES AND 2 THROUGH THE BALLOT. THEY ARE JUDY JOHNSON, SARAH MORGAN, ANGELA GEORGIOU, ANN-MARIE RAMPLEY, DAVID OAKLEY, FRANK LITTLER AND PAUL KIVVY. IF YOU USE FACEBOOK PLEASE GO TO THE "TEAM MUSCLE" PAGE AND BECOME A FAN OR LEAVE A MESSAGE. SPONSORSHIP FORMS WILL BE SENT OUT NEXT WEEK BUT YOU CAN DONATE THROUGH JUST GIVING. WE HOPE ALL OUR RUNNERS WILL SET UP THEIR OWN PAGES SO YOU CAN CHOOSE WHO YOU WOULD LIKE TO SUPPORT! 2 HAVE ALREADY SET UP THEIR PAGES. http://www.justgiving.com/oaksie http://www.justgiving.com/AngelaGeorgiou - if anyone is interested in a place for 2011 please email irene@myositis.org.uk More »  MEMBERSHIP UPDATE
IMPORTANT - POSTAL MEMBERS, IF YOU HAVE NOT RETURNED YOUR MEMBERSHIP UPDATE FORM THAT WAS SENT OUT IN NEWSLETTER 65 YOU HAVE BEEN REMOVED FROM THE MEMBERSHIP LIST. PLEASE SEND BACK THE FORM IF YOU WISH TO BE REINSTATED. IF YOU WERE AN EMAIL MEMBER AND HAVE NOT EMAILED YOUR REQUEST TO CONTINUE MEMBERSHIP YOU HAVE BEEN REMOVED FROM THE EMAIL LIST. PLEASE EMAIL IF YOU WISH TO BE REINSTATED. |
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