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Allied Organisations
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The
Muscular Dystrophy Campaign
The Muscular Dystrophy Campaignis the only UK charity focusing
on all muscular dystrophies and allied disorders. It has pioneered
the search for treatments and cures for over 45 years and provides
practical, medical and emotional support to people affected
by the condition.
Web: http://www.muscular-dystrophy.org
Email: info@muscular-dystrophy.org
Address: Muscular Dystrophy Campaign, National
Office, 7-11 Prescott Place, London, SW4 6BS.
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The Arthritis Research
Campaign
The Arthritis Research Campaign is the only UK charity wholly
dedicated to research into treatment and cures for arthritis.
Web:http://www.arc.org.uk
Email: Info@arc.org.uk
Address: ARC, PO Box 177, Chesterfield, Derbyshire,
S41 7TQ.
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Contact
a Family
Contact a Family is the only UK-wide charity providing advice,
information and support to the parents of all disabled children
- no matter what their disability or health condition. Each
year we reach at least 275,000 families.
Web: http://www.cafamily.org.uk
Email: info@cafamiliy.org.uk
Address: Contact a Family, 209-211 City Road,
London EC1V 1JN.
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The
LTCA
The LTCA is the umbrella body for national voluntary organisations
in the UK working to meet the needs of people with long-term
health conditions. The Myositis Support Group is a member of
the LTCA.
Web: http://www.ltca.org.uk
Email: info@ltca.org.uk
Address: LTCA, 202 Hatton Square, 16 Baldwins
Gardens, London, EC1N 7RJ.
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The
Myositis Association
The Myositis Association is a USA organisation that provides
information, support, advocacy and research for those concerned
about myositis.
Web: www.myositis.org
Address: The Myositis Association, 1233 20th
Street, NW, #402, Washington, DC 20035.
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Cure
JM
The Cure JM Foundation (USA) was established in October 2003
with the goal of raising awareness of this rare disease and
funding research to find a cure for Juvenile Myositis.
Web: http://www.curejm.com
Email: info@curejm.com
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The Muscular Dystrophy
Association
The Muscular Dystrophy Association (of America) is a voluntary
health agency dedicated to conquering more than 40 neuromuscular
diseases that affect millions of Americans of all ages.
Web: http://www.mdausa.org
Address: Muscular Dystrophy Association USA,
National Headquarters, 3300 E. Sunrise Drive, Tucson, AZ 85718,
1-800-FIGHT-MD (344-4863).
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The National Organization
for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)3
organization, is a unique federation of voluntary health organizations
dedicated to helping people with rare "orphan" diseases
and assisting the organizations that serve them. NORD is committed
to the identification, treatment, and cure of rare disorders
through programs of education, advocacy, research, and service.
Web: http://www.rarediseases.org
Address: National Organization for Rare Disorders,
55 Kenosia Avenue, PO Box 1968, Danbury, CT 06813-1968.
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The
European League Against Rheumatism (EULAR)
The European League Against Rheumatism (EULAR) is an organisation
which represents the patient, health professional and scientific
societies of rheumatology in all the European nations. EULAR
endeavors to stimulate, promote, and support the research, prevention,
treatment and rehabilitation of rheumatic diseases. In line
with UEMS, EULAR defines rheumatology as including rheumatic
diseases of the connective tissue, locomotor and musculoskeletal
systems.
Web: www.eular.org
Address: EULAR, Seestrasse 240, CH 8802 Kilchberg
(Zürich), Switzerland.
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The
European Organisation for Rare Diseases (EULAR)
The European League Against Rheumatism (EURORDIS) is a patient-driven
alliance of patient organisations and individuals active in
the field of rare diseases.
Web: www.eurordis.org/secteur.php3?id_rubrique=1
Email:
eurordis@eurordis.org
Address: EURODIS, Plateforme Maladies Rares,
102, rue Didot, 75014 Paris, France.
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The Myositis Support Group has made a Fundraising Promise
commissioned by the Fundraising Standards Board to ensure
its fundraising activities are open and fair. |
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