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Research


Research is an objective of the Myositis Support Group and through fundraising and donations we are able to help. Over the years we have helped fund several research projects and assisted in others.

These have included treatment/therapy trials, specific scientific equipment, collaborative group meetings, and salaries to Myositis investigators. Where we have funded or part-funded a salary the person has held the post in memory of Dr Christine Saunders.

Myositis research is being undertaken across the United Kingdom, Europe and America with much excitement and enthusiasm. The rareness of the diseases makes qualitative research at a single centre and even in a single country difficult. It is through global collaborations and international working groups that promising research is being performed. The Myositis Support Group keenly supports and promotes this work.

The cost of large scale research currently exceeds our funding capacity but the charity would embrace the opportunity to do so. However, the money we raise is spent with the philosophy to fund pilot projects to tempt larger organisations to carry forward the work. This approach has been fruitful on several occasions.

Research supported by the Myositis Support Group has been helped by legacies but we would not have been able to sustain our financial help to this work without continuous donations and fundraising. To date we have raised over £500,000 and it is thanks to our supporters that we can look forward to assisting more doctors with their research into Myositis.

Doctors & Researchers Helped by the Myositis Support Group

» How to Participate in Research?
» Further Research Studies
 
Dr Robert Cooper, Dr Hector Chinoy and Specialist Nurse Cath Edge
Rheumatologists Manchester University

Research Area: Adult Dermatomyositis and Polymyositis

Myositis Support Group helped fund:

  • Genetic studies which have now been performed on over 300 UK patients
  • Collation of serological data with demographic, lifestyle and clinical data to predict outcome and most suitable treatments.
Early funding of this work by the Support Group helped Dr Chinoy obtain a Clinical Research Fellowship grant from the ARC.

» How you can help the Genetic Research
» Medical Publications for this work
» Newsletter Articles of this work

Websites for this work:
1) Details on the Arthritis Research Campaign grant
2) Research at Manchester

"I would like to thank the Myositis Support Group, who have and continue to support our work in Manchester. I think the 3-year Arthritis Research Campaign grant is a direct result of the results generated through the work, and as this was in part funded through the Group, this contribution needs recognition. The Group deserves congratulation on its contribution to the academic progress made in such a short time.”
Dr Robert Cooper, Consultant and Honorary Senior Lecturer in Rheumatology Manchester University

 
 

The Myositis Support Group has made a Fundraising Promise commissioned by the Fundraising Standards Board to ensure its fundraising activities are open and fair.
 
 
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