WELCOME TO MYOSITIS UK

FIGHTING MUSCLE DISEASE

WE PROVIDE INFORMATION TO THOSE AFFECTED BY MYOSITIS AND FUND RESEARCH TO IMPROVE DIAGNOSIS AND TREATMENT.

Recently diagnosed

If you, or someone close to you, has been diagnosed with a form of myositis, we’ve got information to help.

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What is myositis?

Myositis is a rare autoimmune disease that causes muscle weakness. Find out more about the different types.

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Latest research

Myositis UK funds and promotes research to help improve diagnosis, treatment, management and understanding of myositis.

Explore our research

Ways to support

FUNDRAISE

From sponsored silences to challenge runs, join Team Muscle and start fundraising for Myositis UK.

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GIVE

From one off donations to payroll giving, find out how you can give to Myositis UK and support those affected by myositis.

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What's new?

Grants schemes

The next funding call deadline for our small and large grants scheme is Friday 27 September 2024.

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Latest newsletter

Read about all the latest Myositis UK news in our Summer 2024 newsletter.

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Read the latest news from our blog

Three research projects awarded funding from Myositis UK

30 August 2024

In 2023, Myositis UK adopted a new process for reviewing grant applications to decide which research projects to fund in the field of myositis. We awarded four projects using this process in 2023 and are...

Myositis clinical trial opportunities

06 January 2024

Members of Myositis UK living with myositis have been invited to find out more about taking part in two active clinical trials/studies. VALOR Study The VALOR Study is a clinical study sponsored by Priovant Therapeutics...

AMAZING NEWS! The World Myositis Day – WMD – has been founded!

21 September 2023

Representatives of various international myositis groups and – organisations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day....

Team Muscle gallery

Three runners with their London Marathon medals.

What we do

Myositis UK is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment.

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Membership info

Myositis UK is a membership organisation. Membership is free but only available to UK residents. If you are overseas or would prefer to just receive our email mailings, you are welcome to join our email mailing list.

More about membership