Crowd sits for presentation on juvenile dermatomyositis.

Great Ormond Street Hospital host juvenile dermatomyositis Open Day

24th September, 2019

Families affected by juvenile dermatomyositis (JDM) came together this month for a JDM open day organised by Great Ormond Street Hospital (GOSH). JDM is a rare autoimmune condition affecting 3-4 children in every million per year in the UK. Children of...

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Highlights from our AGM and conference

23rd September, 2019

This year’s Myositis UK AGM and conference took place on 23 June at the Double Tree by Hilton Oxford Belfry near Oxford. The event was free to members and provided the opportunity to:

  • Find out more about the...

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Avante Care & Support staff at the afternoon tea fundraiser

Avante Care & Support’s afternoon tea helps raise funds for Myositis UK

15th July, 2019

Last month, Head Office staff at Avante Care & Support in Faversham hosted an afternoon tea to raise awareness and vital funds for Myositis UK. We would like to wish everyone involved a huge thank you for their support.  They also posted...

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Zoe with her London Marathon medal

A reflection on running the London Marathon for Myositis UK

22nd May, 2019

More than 40,000 people took part in this year’s London Marathon including two of our very own supporters raising funds for Myositis UK – Zoe Betteridge and Richard Kirton. Read More

Dermatomyositis – can you help?

3rd September, 2018

The British Association of Dermatologists (BAD) are creating a new public-facing website for patients to help provide the advice and care needed when looking for or undergoing treatment.

As such, the BAD are looking to speak to patients...

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