Representatives of various international myositis groups and – organisations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every...
Myositis UK recently adopted a new process for reviewing grant applications to decide which research projects to fund in the field of myositis. We are pleased to be able to share more information about the four projects which have...
Dr James Lilleker and Dr Hector Chinoy of The University of Manchester have put together this information about immune mediated necrotising myopathy to support those diagnosed with it or simply wishing to know more. What is it? Immune Mediated Necrotising Myopathy (IMNM) is...
The Covid-19 Global Rheumatology Alliance has a new patient survey which members of Myositis UK are encouraged to take part in. The goal of this international adult patient survey is to understand how people with rheumatic disease make decisions regarding Covid-19...
IMPORTANT NOTICE FOR MEMBERS If you wish to continue your free membership of Myositis UK, please ensure you return your membership update form by 5 April 2021. These were sent to you either my email or post (depending on your preferences) back in...
The Covid-19 Global Rheumatology Alliance is running a new patient telemedicine survey which Myositis UK is inviting members to take part in. The patient telemedicine survey is for adult patients with a rheumatic disease or the parents/caregivers of a child with a...
The National Organization for Rare Disorders (NORD) in the United States is hosting a special Covid-19 vaccines update webinar which you are welcome to attend. The 'COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community' webinar will take place...
The 4th Global Conference on Myositis (GCOM) has been postponed until 2022 due to the ongoing Covid-19 pandemic. The event had been due to take place in March 2021, but will now take place from 16-19 March 2022 in Prague, Czech Republic. GCOM...
Myositis UK members are invited to attend a virtual thesis seminar on 16 September at 6PM BST (1pm EDT) with Kyla Britson. Based in the US, Kyla was one of the three young researchers awarded a speed funding grant by Myositis UK...
The Covid-19 Global Rheumatology Alliance is continuing to gather patient experience surveys which Myositis UK is inviting members to take part in. You can partake whether or not you have been diagnosed with coronavirus (Covid-19). The patient experience survey is for adult...
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