The Covid-19 Global Rheumatology Alliance has a new patient survey which members of Myositis UK are encouraged to take part in.
The goal of this international adult patient survey is to understand how people with rheumatic disease make decisions regarding Covid-19 vaccines, in light of their rheumatic disease. Those running the study believe people with myositis would be a very helpful group to examine.
About the study
The survey will include questions about your health and rheumatic disease, whether or not you developed Covid-19, as well as your opinions regarding the Covid-19 vaccines, vaccine availability in your area, and guidance on the vaccine that you may have received from your doctors.
The Covid-19 Global Rheumatology Alliance hopes the survey will help to better understand the barriers and facilitators that people with rheumatic disease encounter regarding Covid-19 vaccination so that they may help to improve the health of people with rheumatic disease across the world.
How this study works
The study will involve a single survey that will ask about your medical history and medications that you take to treat your rheumatic disease.
Who is running the study?
The study is sponsored by an international collaborative, the Covid-19 Global Rheumatology Alliance, which includes a large group of academics, clinicians, and patients working together. Myositis UK is supporting this initiative.
The survey was developed by physicians, patients, and patient-support organisations to understand the patient experience during this pandemic better.
The survey is a collaborative project between doctors and researchers from Boston Children’s Hospital, Beth Israel Deaconess Medical Center, Brigham and Women’s Hospital, Harvard Medical School, Stanford University, the National Institutes of Health, and McMaster University.
