Recently diagnosed
If you or someone close to you has just been diagnosed with myositis, we can help.
![](https://www.myositis.org.uk/wp-content/uploads/2018/11/recently-diagnosed.jpg)
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Not alone
It can be an unsettling time if you’ve been diagnosed with myositis or know someone who has – what is it? How do I even pronounce it? Is there a cure?
While myositis may be rare, you are not alone. Myositis UK has been providing help and funding vital research for over 30 years. We’re a small charity, but we’ve been there and we’re here to help.
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Places to start
Here are some places to start if you need help understanding your recent diagnosis.
- Explore the website. Across our website you will find information to help you better understand myositis and the different conditions. Start here.
- Become a member. You can sign up to become a member of Myositis UK for free (if UK-based) using our online form, giving you access to more information and opportunities.
- Join our Facebook group. We have a closed Facebook group you can request to join to connect with others in a similar position to you.
- Discover our community zone. Not on Facebook? We also have a Community Zone where you can connect with others, hosted on a platform by Health United.
- Contact us. If you can’t find what you’re looking for or are looking for specific information, you can always contact us. Please keep in mind Myositis UK is a small charity run mainly by volunteers, so responses may not be immediate.
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Things to remember
- Being diagnosed with myositis is no one’s fault. While some people may have a predisposition to developing the illness, it is indiscriminate and not the result of lifestyle.
- Myositis is not contagious – so reach out and be there for those recently diagnosed.
- Everyone experiences myositis differently. Be careful when comparing yourself to others and don’t be disheartened.
- There’s no cure – but there is help and support available. We can help you find it.