AGM & Conference

Find out more about Myositis UK’s AGM and conference.

AGM and Conference

Our AGM and conference was held on Sunday 6 July 2025 at the Woodland Grange, Old Milverton Lane, Leamington Spa. Thank you to all who attended.

The annual Myositis UK AGM and conference is held each year and is free to members.

It is a great opportunity to find out more about the work of Myositis UK, learn about ongoing research, and meet others affected by myositis.

This year we had all the talks recorded and they are now available to watch here on Youtube.

You will be able to click on individual links for each talk, details below:

1 – Myositis UK Grants scheme – Professor Lucy Wedderburn
2 – Disease pathways for IBM stratification and therapy – Nathan Routledge PhD Student
3 – New IBM diagnostic criteria – Dr James Lilleker
4 – Sleep disturbances and fatigue in children with Juvenile Dermatomyositis (JDM); do they relate to disease activity and pathology? Dr Charalampia Papadopoulou
5 – Patient and Public Involvement and Engagement in Research – Dr Shraddha Rane
6 – Exercise – Dr Gita Ramdharry
7 – Cancer Screening in Myositis – Dr Alex Oldroyd
8 – NAM/IMNM, emerging treatments – Dr Patrick Gordon
9 – CAR-T cell therapy in myositis – Professor Pedro Machado
10 – The importance of psychology in relation to myositis – Dr Rebecca Dow
11 – Question and Answer session

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