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Meetings // UK MyoNet Meeting

The UK MyoNet meeting organised by Dr Patrick Gordon was held at Kings College London. The meeting was a full day of research update talks and clinical case studies from many research centres. Experts from across the UK MyoNet specialities were present including, Professor Isenberg, Professor Cooper, Professor McHugh, Professor Wedderburn, Dr Rose, Dr Chinnoy, Dr Betteridge as well as researchers and medical students. Much talk was based on collaboration and how to move research forward into patient treatment trials. A final talk was given on funding for delivering standards of care within the NHS framework was changing for specialisms and what doctors need to do to ensure they get funding for rare illnesses within their rheumatology department so they can continue or even pursue myositis as specialism. Irene and Les Oakley, Joanne Goode and Paula Jordan attended the day to represent Myositis UK. The work of UKMyoNet continues and the next meeting is planned for end of 2014.

UK MyoNet (UK Myositis Network) is an open group of multidisciplinary physicians (rheumatologists, neurologists, dermatologists, respiratory physicians, and paediatricians), scientists and other interested parties for the advancement in understanding the pathology and management of the idiopathic inflammatory myopathies. UK MyoNet meets twice a year and has links with MyoNet (previously called EUMyoNet) and the IMACs collaborative group for numerous research projects.

More about Standards of Care can be read on the Alliance for Musculoskeletal (ARMA) website which Myositis UK is a member of.

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